LAM

can you say Lymphangioleiomyomatosis? this is the disease that i have that most of you know about! i have a seperate blog that i write about things pertaining to my health but thought this was such a great post i needed to inform you all here. officially.... it has been one year and 8 days since i last left the hospital. how desperately i needed this year to spend with my family, breathe freely, excercize, get my head straight and try to work through this hell i have been living with for the last two years. wow... i can not beleive i have been diagnosed for two whole years!!!!!! i have...knock on wood... been feeling really pretty good...knock on wood and really needed that. the doctors are fairly hopeful about a drug treatment trial that has started this past month. if the drugs work we could possibly have a way to slow the progression of this terrible disease or to stop it all together. what a miracle that would be!!!! this is my best chance at living a full life and watching my daughter grow up, get married and hopefully.... give me some grandbabies ( in that order please). we are hopeful and praying for that miracle. in the mean time i continue on trying to take care of myself as best i can and praying that i will be able to keep out of the hospital and the looney bin. thanks to all of you for loving me and my family, for sticking by me through this trial and for simply being there when i need you. for this i am truely grateful. im not dying today and with lots of miracles...i will be here for a long time to come.
xoxo and lots of love- bri